Two new AIDAVA videos are now live! 🎬 Introduction to AIDAVA covers what the project is all about: an AI powered virtual assistant developed by 14 European partners that automates the curation of personal health data, putting patients back in control and making health records interoperable and reuse ready across Europe. 🎬 Demonstration of AIDAVA G2 shows the second generation system tested in 4 hospitals, working with real clinical use cases in breast cancer registries and cardiovascular patient records. Watch both and see what "curate once, use many times" looks like in practice. 👉 https://lnkd.in/dqdRFfrJ 👉 https://lnkd.in/dK_sANFq
AIDAVA
Onderzoeksdiensten
Automate Curation and Publishing of Personal Health Data Through Artificial Intelligence
Over ons
All available personal health data of an individual in one consistent semantic model: through its sophisticated research project, the interdisciplinary AIDAVA consortium of 12 European partners and two associated partners will develop a digital solution, orchestrating diverse artificial intelligence technologies, for more efficient curation and publishing of personal health data, delivering interoperable and reusable personal health records for the benefit of patients and clinical researchers.
- Website
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aidava.eu
Externe link voor AIDAVA
- Branche
- Onderzoeksdiensten
- Bedrijfsgrootte
- 51 - 200 medewerkers
- Hoofdkantoor
- Brussels
- Opgericht
- 2022
- Specialismen
- AI, Personal Health Data, Research en HorizonEurope
Updates
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🗓️ Two more AIDAVA roundtables are coming up this June! As the European Health Data Space moves toward implementation, we are continuing our series of structured stakeholder discussions, this time with decision-makers and industry. 🏛️ Decision-Makers Roundtable 📅 June 2 | Brussels, Belgium 🏭 Industry Roundtable 📅 June 9 | Online 👉 Read more: https://lnkd.in/d-dPxSSY
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Europe already curates health data. But dedicated staff curate it time and time again, whenever they need it for a specific purpose. 🤖 Mapping, cleaning, validation, transformation. Project after project. EHDS assumes reuse at scale. Current practice assumes one-off projects. That mismatch is where costs and human errors (fatigue, different interpretation) explode. By orchestrating multiple AI tools, AIDAVA curates efficiently, once and for all, all patient data into a Personal Health Graph. From this high-quality interoperable and reusable knowledge graph, multiple outputs can be generated. 🎯 Find more information in the Frontiers paper: https://lnkd.in/ebQP2GB5 and on our website: https://lnkd.in/dVtPnAXw.
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AIDAVA heeft dit gerepost
Research Perspectives on the European Health Data Space: Challenges and Opportunities for Implementation 💡 🌍 The workshop will bring together researchers and experts from European-funded projects to discuss the European Health Data Space (EHDS). Structured around 3️⃣ key themes (Data Governance, Data Quality, and Ethical Aspects), the workshop aims to collect practical insights, identify current limitations of the EHDS framework, and develop concrete recommendations for its future implementation. The outcomes of the discussion will contribute to a policy paper intended to support and inform the European Commission in the implementation of the EHDS. See you on Monday, June 29 in Brussels! 🇧🇪 🇪🇺 Funded by the European Union Grant Agreement: 101057726 #eCREAM DataTools4Heart | AIDAVA | IDEA4RC Project | RES-Q Registry of Stroke Care Quality | xShare project
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EHDS introduces standardised data source catalogues, called Data (Source) Description. ℹ️ The EHDS Data (Source) Description requires metadata related to financial and legal aspects as well as metadata on the patient population. EHDS does not require a detailed description of the data sources while this is critically needed to enable automated curation and individual data quality check. Today, many hospitals still lack: ➡️ complete documentation of their data sources (or this documentation is embedded in old files, or it is available only through potentially different EHR vendors supporting the hospital) ➡️ consistent semantic mappings of their data ➡️ teams dedicated to data governance Without automation, this becomes another burdensome compliance layer. Regulation scales instantly. Documentation does not. Find more information here: https://lnkd.in/dVtPnAXw
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EHDS introduces the Data Quality & Utility Label, implemented by QUANTUM 📣 QUANTUM label is the result of self-certification by an organisation indicating how they manage data quality within their organisation. It does check quality at organisational level not at individual level. On the other hand, AIDAVA focused on INDIVIDUAL data quality through Data Quality checks applied to each individual patient record. AIDAVA DQ checks are scalable as they apply on the crated patient record (the ‘personal health graph’). AIDAVA enables regulation to scale and complements QUANTUM label. Find more information check our publication on Data Quality in JMIR (https://lnkd.in/dcJfB_5V) and our EHDS feasibility white paper: https://lnkd.in/dVtPnAXw
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🎥 The patients are at the heart of AIDAVA and now you can hear directly from them. We're excited to share the recordings from our Patients Advocacy Group Roundtable, featuring conversations that shaped our understanding of what truly matters when it comes to personal health data. 👉 Watch all the videos here: https://lnkd.in/dK2krtnN
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AIDAVA heeft dit gerepost
📽️ Insights from last week’s patient workshop at the European Parliament Hosted by MEP Aurelijus Veryga (ECR, Lithuania) and supported by the EU-funded project AIDAVA, the workshop brought together key stakeholders to explore trust, data quality, and patient involvement within the European Health Data Space (EHDS). In this clip, Isabelle de Zegher and Kristof Vanfraechem reflect on key lessons from the AIDAVA project on patient engagement, and how these can help build more trustworthy and effective health data systems. AIDAVA meaningfully engaged patient consultants, coordinated through patient organisations such as EHN, ensuring they were truly part of the project, contributing to requirements, validation, and communication, while bringing valuable insights and a strong sense of purpose to the work. 🤝 This approach leaves a clear footprint: patients as full participants in research projects, not just contributors. ▶️ Watch the full videos on YouTube: https://lnkd.in/dem8T2bW 🔗 Learn more about AIDAVA: https://www.aidava.eu/ #EHDS #HealthData #PatientEngagement
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Hospitals are at the centre of EHDS implementation, and bear most of the burden. 🏥 Under the regulation, they must provide patient data (cross-border) in EEHRxF format and they must answer requests from authorities. That sounds technical. It is also operational. In practice, hospitals must extract data from multiple systems, harmonise formats, validate quality, and keep everything updated continuously. Most of this, remains a heavily manual process. The question is not whether EHDS is a good idea; it is key to ensure all European Citizens have access to personalised care and benefits from AI solutions. The question is whether Europe can afford it.❓ Find more information in our white paper: https://lnkd.in/dVtPnAXw and on slides: https://lnkd.in/dihdVd-u
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AIDAVA heeft dit gerepost
🎥 Watch the video highlights from our patient workshop Hosted by MEP Aurelijus Veryga (ERC, Lithuania), organised by the European Heart Network (EHN) and supported by the EU-funded project AIDAVA, the workshop took place yesterday at the European Parliament. It brought together key stakeholders to discuss data quality and trust within the European Health Data Space (EHDS), with the participation of Leonardo Cervera-Navas Cervera Navas, Secretary General of the European Data Protection Supervisor (EDPS). 💬 Throughout the discussions, the importance of patients’ lived experiences and their involvement across the entire process was strongly emphasised. As highlighted by both policymakers and patient representatives, patients must be recognised as equal partners in projects involving health data sharing, leading to better outcomes for both patients and clinicians. Following thoughtful exchanges, the workshop culminated in a Patient Call to Action, outlining key priorities for policymakers and stakeholders involved in the implementation of EHDS, including: 🔹 Trust through transparency, security, and accountability 🔹 Meaningful patient involvement in design and governance 🔹 Improved communication and digital literacy 🔹 Strong oversight and enforcement frameworks 🔹 Patient ownership of health data 🔹 AI as an enabler of more human-centred care ❤️ EHN is proud to support initiatives that contribute to meaningful patient engagement and projects such as AIDAVA, which advance high-quality, patient-centred data. 🙏 A heartfelt thank you to MEP Veryga for hosting the workshop, to the AIDAVA consortium partners involved, and to all participants for their valuable contributions. Ulrich Janßen, Merșa Caius Ovidiu, Pauline O'Shea Michael Madigan, Isabelle de Zegher, Mehitabel Holler, Kristof Vanfraechem, Gregorio Sambataro #EHDS #HealthData #PatientEngagement