Motor Neurone Disease (MND) Association

We have recently improved the way we provide financial support to people affected by motor neurone disease — which is also the focus of our Spring Appeal. Whether it’s contributing to essential home adaptations, helping someone continue a hobby that brings them joy, or giving a young carer a much‑needed break, our funds exist to help make every day matter. Explore our available support today. 🔗 mndassoc.org/supportfunds

To honour their manager, who recently received a motor neurone disease diagnosis, 20 colleagues from the Telford & Wrekin Council took on the Snowden Zip Wire. Sam, who took part, shared "We wanted to do something to try and make a difference, so had the idea of doing the fundraiser. Our lovely manager did the zip wire with us too which was fantastic. She is brave every single day fighting this disease and that kept us going when the nerves kicked it waiting at the top. "Any fundraiser for MND is 100% worth your time. Together we must find a cure for this awful disease." Well done team, thank you for helping to make every day matter. 🧡

Applications for researchers close this Monday — don’t miss your chance! MND EnCouRage returns this July, offering Early Career Researchers a standout opportunity to connect, showcase their work, and engage directly with the MND community. 📍14–15 July 📆Loughborough Apply now🔗 https://lnkd.in/gP4BsYjb

We’re hiring a Marketing Manager and Brand Manager! If you’re a strategic thinker with strong marketing or brand expertise, great stakeholder skills and a talent for turning insight into impactful work, we’d love to hear from you. Join us to help shape marketing and brand activity that truly makes a difference. 👉 Apply now https://lnkd.in/eDTGW_Yi

For Patrick, music is his purpose. But living with motor neurone disease means adapting the way he creates, plays, and connects with his talent. Our Support Funds help people with or affected by MND keep hold of the things that make them feel like themselves. Your donations make that possible. Help people with MND make the most of every day. Donate to our Spring Appeal. 🔗mndassoc.org/springappeal

Earlier this week, the All-Party Parliamentary Group (APPG) on Motor Neurone Disease came together for one of its regular meetings, bringing MPs from across Parliament to discuss key issues affecting the MND community. This session focused on access to Tofersen for people with SOD1-MND, the importance of genetic testing, and the work of the Casey Commission. A huge thank you to all of the MPs who attended. We would also like to congratulate Ian Byrne MP for being re-elected as Chair of the APPG. You are helping make every day matter for people affected by MND.

Our new brand carries six unique fingerprints: a reminder of the six people diagnosed with MND every day, and the six who die from it every day. A simple, powerful reminder that every individual matters.

We’re looking for a collaborative and data‑driven Insight Analyst to help us turn organisational data into meaningful insight that drives real impact.   If you’re passionate about using data to make a difference, and want to contribute to work that truly matters, we’d love to hear from you.   👉 Apply now and help us transform data into action https://lnkd.in/ev7iK5aV

Are you an early‑career MND researcher? 🔬 Applications are now open for our annual MND EnCouRage event — apply by 30 March for the chance to share your work with the MND community, fellow researchers and leading professionals. 📍 Loughborough 📆 14-15 July 🔗https://lnkd.in/e9cmnQz7

"I'll thank her for the rest of my life." Ellie's tribute to her mum, Nickie. You can read Nickie's story below. 🧡 https://lnkd.in/e8AAfeJc